Information and support for patients and families

From Cancer Guidelines Wiki

Information and support for patients and families

Fertility information and decision aids

Maybe Later Baby is a book for young people who have been diagnosed with cancer developed by CanTeen, the Australia Organisation for Young People Living with Cancer. It has information for young people just diagnosed with cancer and about to start treatment, about fertility preservation options and questions to ask, and also for those who have had treatment, about fertility testing and options for having a family. It can be downloaded from this website or you can order printed copies (free).

Website: www.nowwhat.org.au

  • Male Infertility: A child of my own

Male Infertility: A child of my own is a book for Australian couples affected by male infertility. It includes information on semen storage for men who have been diagnosed with cancer, and also for those who have had treatment, about fertility testing and options for having a family. It can be downloaded or ordered (free) from the Andrology Australia website.

Website: www.andrologyaustralia.org

  • Fertility-related choices: a decision aid for younger women with early breast cancer with early breast cancer

This booklet provides information about the possible effect of cancer treatment on fertility and fertility options for young women who have recently been diagnosed with early breast cancer.

Website: www.bcna.org.au

Fertile Hope is a LIVESTRONG initiative dedicated to providing reproductive information and support to cancer patients and survivors at risk for infertility. It includes a:
Risk calculator – risk to fertility based on gender, cancer type and treatment
Options calculator – summarising fertility preservation options available to patients based on age, treatment type and treatment stage.

Website: www.fertilehope.org

The Oncofertility Consortium is a national, interdisciplinary initiative designed to explore the reproductive future of cancer survivors. It is supported by the (US) National Institutes of Health. This site includes information for patients about fertility preservation options, and links to other sources of information for patients.

Website: www.oncofertility.northwestern.edu

MyOncofertility is an education resource developed by the Oncofertilty Consortium, providing information for patients, partners and parents about fertility risks and options before and after treatment.
Website: www.myoncofertility.org

SaveMyFertility.org is a joint resource of the Oncofertility Consortium and The Hormone Foundation (US organisations). It includes fact sheets for patients and parents.

Website: SaveMyFertility.org

This site provides information developed by Macmillan Cancer Support (UK) for teenagers with cancer, including information about fertility and sexuality during and after cancer treatment.

Website: www.click4tic.org.uk

  • Cancer Australia – Breast cancer and fertility

This section of the Cancer Australia website provides information for women about the effects of breast cancer treatment on fertility, contraception during and after breast cancer treatment, and pregnancy and breast cancer.

Website: www.canceraustralia.gov.au


Support for AYAs with cancer

  • CanTeen

CanTeen - The Australian Organisation for Young People Living with Cancer - is a national support organisation for 12 to 24 year olds who are living with cancer. CanTeen provides information and programs to support and empower young people affected by cancer.

CanTeen’s website for young people living with cancer provides information, forums and blogs and ways to connect with other young people in the same situation.

Website: www.nowwhat.org.au

  • Cancer Council Helpline: 13 11 20

Cancer Council Helpline is a free, confidential telephone information and support service run by Cancer Councils in each state and territory. 
Specially trained staff are available to answer questions about cancer, offer emotional or practical support, and refer young people to age-appropriate support groups or services.


Information about early menopause after cancer

  • The Jean Hailes Foundation for Women’s Health

‘Early menopause’ website

Website: www.earlymenopause.org.au

  • Cancer Australia

Information for women diagnosed and treated for breast cancer who may be at risk of early menopause.

Website: www.canceraustralia.gov.au

Breast cancer and early menopause - a guide for younger women. This booklet provides information for younger women diagnosed and treated for breast cancer who may be at risk of early menopause.

Website: www.canceraustralia.gov.au

“Cancer Australia’s booklet Breast cancer and early menopause – a guide for younger women provides information for younger women diagnosed and treated for breast cancer who may be at risk of early menopause”

  • Australian Menopause Society

Early menopause fact sheet

Website: www.menopause.org.au

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