Resources

From Cancer Guidelines Wiki
Youth Cancer Services provide medical and treatment support services for adolescent and young adults (AYAs) with cancer throughout Australia. A streamlined referral pathway ensures that patients receive medical, surgical and psychological services in a timely manner involving adult and paediatric cancer specialists collaborating over the care of patients.


Visit the website for access to:

  • State by state Youth Cancer Service directory
  • Support services directory to search for a full range of community and support services for young people during or after cancer treatment.
  • Information for AYA patients about cancer, treatments, side effects, dealing with cancer and more.


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Information and support for health professionals

Guidelines

Recommended reading

  • Baile, W.F., Buckman, R., Lenzi, R., et al. 2000. SPIKES - A six-step protocol for delivering bad news: application to the patient with cancer. Oncologist, 5, (4) 302-311.
  • Bleyer, A.W. & Barr, R.D. (eds) Cancer in Adolescents and Young Adults. 2007. New York, Springer Publishing.
  • Booth, M.L., Knox, S., & Kang, M. 2008. Encounters between adolescents and general practice in Australia. J Paediatr.Child Health, 44, (12) 699-705.
  • CanTeen 2011. Supporting adolescent and young adult siblings of cancer patients: the family context. Research to practice paper, Issue 1.
  • Dang-Tan, T., Trottier, H., Mery, L.S., et al. 2008. Delays in diagnosis and treatment among children and adolescents with cancer in Canada. Pediatr.Blood Cancer, 51, (4) 468-474.
  • Greydanus, D., Patel, D. & Pratt, H. Essential Adolescent Medicine. 2006. New York, McGraw-Hill.
  • McCutcheon, L.K., Chanen, A.M., Fraser, R.J., et al. 2007. Tips and techniques for engaging and managing the reluctant, resistant or hostile young person. Med J Aust., 187, (7 Suppl) S64-S67.
  • Mitchell, G.K. 2008. The role of general practice in cancer care. Aust.Fam.Physician, 37, (9) 698-702.
  • Neinstein, L. (ed) Adolescent health care: a practical guide. 5th Ed. 2007. Philadelphia, Lippincott Williams & Wilkins.
  • Steinberg, L. & Morris, A.S. 2001. Adolescent development. Annu.Rev.Psychol., 52, 83-110.
  • Strasburger, V., Brown, R., Braverman, P., et al. Adolescent Medicine: A Handbook for Primary Care. 2006. Philadelphia, Lippincott Williams & Wilkins.

Education, training and resource providers

  • Cancer Learning (Cancer Australia)

Evidence-based learning activities, resources and information to assist health professionals to build or plan professional development programs. Click here for activities and information relating specifically to young people, including Adolescent and Young Adult (AYA) Cancer Professional Development Pathway.

Website: http://www.cancerlearning.gov.au

  • onTrac@PeterMac

Professional development, education and training opportunities and resources for health professionals working with young people, including Practice Framework for Working with 15–25 year-old Cancer Patients Treated within the Adult Health Sector.

Website: http://www1.petermac.org/ontrac/

  • NSW Centre for the Advancement of Adolescent Health

A technical support agency providing a range of education, training, information and resources on health issues for young people, including Adolescent Health: Enhancing the skills of General Practitioners in caring for young people from culturally diverse backgrounds, GP Resource Kit 2nd Edition.

Website: http://www.caah.chw.edu.au

  • NSW Association for Youth Health

Provides the youth health sector with support and training, government liaison and lobbying, policy and resource development, and community sector networking. Resources include Working with Young People: Ethical and Legal Responsibilities for Health Workers.

Website: http://www.nayh.org.au

  • The Centre for Adolescent Health, University of Melbourne

Provides clinical services, community programs, training, research, resources and distance education programs in adolescent health.

Website: http://www.rch.org.au/cah

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Information and support for patients and families

Support for AYAs with cancer

  • Youth Cancer Services

Information for young people about cancer, treatments, side effects, dealing with cancer and more.

Website: http://www.youthcancer.com.au

  • onTrac@PeterMac

Information for young people on cancer diagnosis and treatments.

Website: http://www1.petermac.org/ontrac/

  • CanTeen

Information and programs to support and empower young people affected by cancer.

Website: http://www.canteen.org.au

  • Now what?

Website for young people living with cancer to connect with others in the same situation and provides printed and audio-visual resources (free of charge), including Now What...? A young person’s guide to dealing with cancer - book providing support and information to help young people who have or had cancer get their head around their diagnosis, deal with practical and emotional challenges and regain a sense of control.

Website: http://www.nowwhat.org.au

  • Cancer Australia

Produces a booklet called Cancer – how are you travelling? with information about the emotional and social impact of cancer for people diagnosed with cancer, their family and friends.

www.canceraustralia.gov.au

  • Cancer Council Helpline 13 11 20

Free confidential telephone information and support service with specially trained staff available to answer questions about cancer, offer emotional or practical support, and refer young people to age-appropriate support groups or services.

  • Warwick Foundation

Supports young people (18-40 years) on their cancer journey and participates in health promotion, advocacy and awareness campaigns.
Website: http://www.thewarwickfoundation.org.au

  • Leukaemia Foundation

Dedicated to care and cure of patients and families living with blood cancers (leukaemias, lymphomas, myeloma and related blood disorders). Provides financial, accommodation and transportation assistance, information, education and support programs, including Young adults with a blood cancer - book providing information on diagnosis and treatment, side effects and the physical, social and psychological impacts of diagnosis and treatment. Also discusses longer term effects and life after cancer.
Website: http://www.leukaemia.org.au

International organisations

  • Teenage Cancer Trust

Information, peer support and resources about the symptoms, diagnosis, treatment and psychosocial aspects of cancer for young people.
Website: http://www.teenagecancertrust.org/

  • Teens Living with Cancer

Information and resources about cancer, treatments and support presented by teens for teens.
Website: http://www.teenslivingwithcancer.org

  • Teen Info on Cancer

Information, resources and blogs for young people with cancer.
Website: http://www.click4tic.org.uk/ticit

  • LIVESTRONG

Mission to inspire and empower cancer sufferers and their families and provides free education and resources, including Planning for Life After Cancer: A Guide to Survivorship for Teens and Young Adults - checklist for AYA cancer survivors regarding the physical, emotional and practical concerns they may have to deal with in their life after treatment.

Website: http://www.livestrong.org

  • HopeLab (Re-MissionTM)

Video game developed specifically for young adults with cancer, where players pilot a nanobot named Roxxi as she travels through the bodies of fictional cancer patients destroying cancer cells, battling bacterial infections, and managing side effects associated with cancer and cancer treatment.

Website: http://www.hopelab.org/innovative-solutions/

Support for family and friends

  • CanTeen

Information for families and ‘tips’ for friends of young people living with cancer.
Website: http://www.canteen.org.au

  • Now what?

Website for young people living with cancer provides printed and audio-visual resources (free of charge), including:

Website: http://www.nowwhat.org.au

  • Redkite

Provides financial and educational assistance and emotional support to the whole family of young people with cancer, including telephone support and telegroups (professionally facilitated telephone based peer support groups).

Website: http://www.redkite.org.au

  • Siblings Australia

Provides support for brothers and sisters of people with special needs including disability, chronic illness and mental health issues.

Website: http://www.siblingsaustralia.org.au

  • Leukaemia Foundation

Dedicated to care and cure of patients and families living with blood cancers (leukaemias, lymphomas, myeloma and related blood disorders). Provides financial, accommodation and transportation assistance, information, education and support programs.

Website: http://www.leukaemia.org.au

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