|Youth Cancer Services provide medical and treatment support services for adolescent and young adults (AYAs) with cancer throughout Australia. A streamlined referral pathway ensures that patients receive medical, surgical and psychological services in a timely manner involving adult and paediatric cancer specialists collaborating over the care of patients.
Information and support for health professionals
- National Collaborating Centre for Primary Care. Referral Guidelines for Suspected Cancer. 2005. London, National Institute for Health and Clinical Excellence.
- New Zealand Guidelines Group. Suspected cancer in primary care: guidelines for investigation, referral and reducing ethnic disparities. 2009. Wellington, New Zealand Guidelines Group.
- Adolescent and Young Adult Working Party of the Statewide Cancer Clinical Network. South Australian Adolescent and Young Adult Cancer Care Pathway. 2010. Adelaide, South Australia Department of Health.
- Australian Cancer Network Diagnosis and Management of Lymphoma Guidelines Working Party. Clinical Practice Guidelines for the Diagnosis and Management of Lymphoma. 2005. Sydney, Cancer Council Australia and Australian Cancer Network.
- Australian Cancer Network. Clinical practice guidelines for the diagnosis and management of lymphoma, a guide for general practitioners. 2007. Sydney, Cancer Council Australia and Australian Cancer Network.
- National Comprehensive Cancer Network. NCCN Clinical Practice Guidelines in Oncology. Bone Cancer. Version 1.2012.
- National Collaborating Centre for Cancer. Improving Outcomes for People with Sarcoma: The Manual. 2006. London, National Institute for Health and Clinical Excellence.
- National Comprehensive Cancer Network. NCCN Clinical Practice Guidelines in Oncology. Testicular Cancer. Version 2.2011.
- Australian Cancer Network Melanoma Guidelines Revision Working Party. Clinical Practice Guidelines for the Management of Melanoma in Australia and New Zealand. 2008. Sydney, Cancer Council Australia and Australian Cancer Network and Wellington, New Zealand Guidelines Group.
- Australian Cancer Network. Melanoma – An aide Memoir to Assist Diagnosis. 2008. Sydney, Cancer Council Australia and Australian Cancer Network.
- Royal Australian College of General Practitioners. Guidelines for Preventive Activities in General Practice (7th Edition). 2009. South Melbourne, Royal Australian College of General Practitioners.
- Royal College of Pathologists of Australia. RCPA Manual. 2011. Sydney, Royal College of Pathologists of Australia.
- Mendelson, R. (ed) Diagnostic Imaging Pathways. 2011. Perth, Western Australia Department of Health.
- Baile, W.F., Buckman, R., Lenzi, R., et al. 2000. SPIKES - A six-step protocol for delivering bad news: application to the patient with cancer. Oncologist, 5, (4) 302-311.
- Bleyer, A.W. & Barr, R.D. (eds) Cancer in Adolescents and Young Adults. 2007. New York, Springer Publishing.
- Booth, M.L., Knox, S., & Kang, M. 2008. Encounters between adolescents and general practice in Australia. J Paediatr.Child Health, 44, (12) 699-705.
- CanTeen 2011. Supporting adolescent and young adult siblings of cancer patients: the family context. Research to practice paper, Issue 1.
- Dang-Tan, T., Trottier, H., Mery, L.S., et al. 2008. Delays in diagnosis and treatment among children and adolescents with cancer in Canada. Pediatr.Blood Cancer, 51, (4) 468-474.
- Greydanus, D., Patel, D. & Pratt, H. Essential Adolescent Medicine. 2006. New York, McGraw-Hill.
- McCutcheon, L.K., Chanen, A.M., Fraser, R.J., et al. 2007. Tips and techniques for engaging and managing the reluctant, resistant or hostile young person. Med J Aust., 187, (7 Suppl) S64-S67.
- Mitchell, G.K. 2008. The role of general practice in cancer care. Aust.Fam.Physician, 37, (9) 698-702.
- Neinstein, L. (ed) Adolescent health care: a practical guide. 5th Ed. 2007. Philadelphia, Lippincott Williams & Wilkins.
- Steinberg, L. & Morris, A.S. 2001. Adolescent development. Annu.Rev.Psychol., 52, 83-110.
- Strasburger, V., Brown, R., Braverman, P., et al. Adolescent Medicine: A Handbook for Primary Care. 2006. Philadelphia, Lippincott Williams & Wilkins.
Education, training and resource providers
- Cancer Learning (Cancer Australia)
Evidence-based learning activities, resources and information to assist health professionals to build or plan professional development programs. Click here for activities and information relating specifically to young people, including Adolescent and Young Adult (AYA) Cancer Professional Development Pathway.
Professional development, education and training opportunities and resources for health professionals working with young people, including Practice Framework for Working with 15–25 year-old Cancer Patients Treated within the Adult Health Sector.
- NSW Centre for the Advancement of Adolescent Health
A technical support agency providing a range of education, training, information and resources on health issues for young people, including Adolescent Health: Enhancing the skills of General Practitioners in caring for young people from culturally diverse backgrounds, GP Resource Kit 2nd Edition.
- NSW Association for Youth Health
Provides the youth health sector with support and training, government liaison and lobbying, policy and resource development, and community sector networking. Resources include Working with Young People: Ethical and Legal Responsibilities for Health Workers.
- The Centre for Adolescent Health, University of Melbourne
Provides clinical services, community programs, training, research, resources and distance education programs in adolescent health.
Information and support for patients and families
Support for AYAs with cancer
- Youth Cancer Services
Information for young people about cancer, treatments, side effects, dealing with cancer and more.
Information for young people on cancer diagnosis and treatments.
Information and programs to support and empower young people affected by cancer.
- Now what?
Website for young people living with cancer to connect with others in the same situation and provides printed and audio-visual resources (free of charge), including Now What...? A young person’s guide to dealing with cancer - book providing support and information to help young people who have or had cancer get their head around their diagnosis, deal with practical and emotional challenges and regain a sense of control.
- Cancer Australia
Produces a booklet called Cancer – how are you travelling? with information about the emotional and social impact of cancer for people diagnosed with cancer, their family and friends.
- Cancer Council Helpline 13 11 20
Free confidential telephone information and support service with specially trained staff available to answer questions about cancer, offer emotional or practical support, and refer young people to age-appropriate support groups or services.
- Warwick Foundation
Supports young people (18-40 years) on their cancer journey and participates in health promotion, advocacy and awareness campaigns.
- Leukaemia Foundation
Dedicated to care and cure of patients and families living with blood cancers (leukaemias, lymphomas, myeloma and related blood disorders). Provides financial, accommodation and transportation assistance, information, education and support programs, including Young adults with a blood cancer - book providing information on diagnosis and treatment, side effects and the physical, social and psychological impacts of diagnosis and treatment. Also discusses longer term effects and life after cancer.
- Teenage Cancer Trust
Information, peer support and resources about the symptoms, diagnosis, treatment and psychosocial aspects of cancer for young people.
- Teens Living with Cancer
Information and resources about cancer, treatments and support presented by teens for teens.
- Teen Info on Cancer
Information, resources and blogs for young people with cancer.
Mission to inspire and empower cancer sufferers and their families and provides free education and resources, including Planning for Life After Cancer: A Guide to Survivorship for Teens and Young Adults - checklist for AYA cancer survivors regarding the physical, emotional and practical concerns they may have to deal with in their life after treatment.
- HopeLab (Re-MissionTM)
Video game developed specifically for young adults with cancer, where players pilot a nanobot named Roxxi as she travels through the bodies of fictional cancer patients destroying cancer cells, battling bacterial infections, and managing side effects associated with cancer and cancer treatment.
Support for family and friends
Information for families and ‘tips’ for friends of young people living with cancer.
- Now what?
Website for young people living with cancer provides printed and audio-visual resources (free of charge), including:
- It's like this... How young people and their parents deal with cancer - DVD for parents of young people to give an understanding of the experience of living with cancer as an adolescent and young adult. It explores the whole range of cancer experiences including that of bereavement.
- Now What...? Dealing with your sibling’s cancer - book providing support and advice to help young people deal with the practical and emotional challenges of living with a sibling with cancer.
- Friends resources - including information young people can give to their friends on how they can show support during their cancer journey.
Provides financial and educational assistance and emotional support to the whole family of young people with cancer, including telephone support and telegroups (professionally facilitated telephone based peer support groups).
- Siblings Australia
Provides support for brothers and sisters of people with special needs including disability, chronic illness and mental health issues.
- Leukaemia Foundation
Dedicated to care and cure of patients and families living with blood cancers (leukaemias, lymphomas, myeloma and related blood disorders). Provides financial, accommodation and transportation assistance, information, education and support programs.